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TREAT ALS� Program Supports New Clinical Trial
for ALS Patients Open for Enrollment
(March 11, 2009) A clinical trial for patients with rapidly progressive forms of familial amyotrophic lateral sclerosis (ALS) has begun enrollment at Emory University. The study, using the drug arimoclomol, will specifically target ALS caused by mutations in the superoxide dismutase (SOD1) gene.
This trial is being supported by The ALS Association as part of the Translational Research Advancing Therapies for ALS (TREAT ALS�) program.
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Congress Funds ALS Registry, Respite Care
A few minutes ago, we secured two important victories in the fight against ALS as the United States Senate voted to provide an additional $5 million for the national ALS registry and $2.5 million in funding for respite care! The funding for both programs was included in the Fiscal Year 2009 Omnibus Appropriations bill, which is expected to be signed into law by President Obama in the coming days.
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FDA, Insmed, Inc. Announce Special Program for IPLEX
This morning, the U.S. Food & Drug Administration granted approval for a limited number of people with ALS in the United States to receive IPLEX, a drug that combines insulin-like growth factor (IGF-1) and IGF binding protein 3. IPLEX, which has not been approved for use in ALS, is manufactured by Richmond, VA-based Insmed, Inc. The new program is the result of an agreement between the FDA and Insmed.
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New Gene Mutation Discovery by ALS Association Consortium
is Major Research Breakthrough
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